One Mum honestly confessing what it is really like to have a NICU baby with CHD and championing NICU and Maternal Mental Health issues to help raise awareness, support and comfort to others.
Search This Blog
Possibly the highlight of my writing career to date being published on the frankly amazing @scarymommy I have been fan girling ever since I found out! A special shout out to Sam Day who has been as excited if not more than me too! It is a subject I am so so passionate about and the fact it could reach more people especially vulnerable new mums makes me soo happy! Today will consist of a lot of happy squealing! The link you can visit;
Elijah the heart hero never letting anything stop him. Today is your 4th heart day. It's 4 years since we took you down to Great Ormond Street for open heart surgery. It seems to have crept up on us again. Another whole year has passed but it hasn't changed how I feel about that day. Some have said that oh, by now surely you should have gotten over it after all it's been 4 years. The answer is I don't think I ever will. I have been thinking a lot about that day, where I signed the consent forms for them to take you and operate on you. To either save or take your life. That day was the worst of my life, the unknown certainty of whether you would come back up again. I held you as they put you to sleep. They gave me your dummy as they took you from me and laid you on the operating table as if you weighed nothing. I couldn't even kiss you goodbye in case it was the last time. That's why I won't ever get over it and those who have been in the
Eighteen months have passed since our beautiful little miracle emerged (I say emerged because 'vigorously ripped out' doesn't have the same ring to it). The rollercoaster of the past year and a half has somewhat levelled off, and things have become almost normal. Now feels as good a time as any, for me to confess (to HONESTLY confess) what it's like to give birth, become a mother, and cope with the joys of reflux, teething, milestones and TODDLERDOM! And how having an NICU baby with a heart defect makes these things all the more stressful. Oh, and there's also my increasing fear that Elijah is Damien from the Omen, with his endless antagonising of our cats. I will save the nine glorious months of swollen feet, constipation, and eating chocolate on the sofa, like a whale (whilst watching RHOBH in my pants) for another time. This is the story of how Elijah was born. To be honest, after watching numerous programmes on TV, they make it look like, once your
Disbelieving the diagnosis. Every day for 28 days I will be taking part in the #chdphotochallenge over on my Instagram but I will also be blogging everyday too. Today, is day one and the theme is Diagnosis. I can remember vividly when we recieved Elijah's diagnosis of CHD and Tetralogy of Fallot. It is a day I don't look back on fondly. We were visited bedside by the consultant on the maternity ward. We were told via diagrams that Elijah's heart wasn't working correctly. There were numerous structural abnormalities which were causing his cynatic episodes. In layman's terms his heart leaked back de oxygenated blood, there was a hole that would need to be repaired and thickening of the heart muscle too. The terms overwhelmed me, I didn't know what they really meant for my baby who was fighting for his life. Receiving the diagnosis was the day our lives changed forever. We were no longer new parents but heart parents of a CHD bab