It is one thing to be coping with the fact your child needs surgery, (read here to the one with Elijah’s surgery) it is quite another that they may have brain damage. I had visions that our house would need to be adapted, that I may never hear my son’s first word. That he might never take his first steps. Some children a neo natal stroke does affect them in any way, the bleed breaks up and it is like they have never had it. In some it does have complications that last well into adult life. Before Elijah’s surgery he had a blood test to see how the clot had broken up, and has had scans on his head to check this as well. All came back clear.
It is an amazing feeling to know that you do not have to mark the days, weeks, months off until the next appointment. That we can go on and enjoy the summer (I use that term loosely with the so called weather) we can plan a holiday! We completely missed out of spending time as a family last years with his post op surgery recovery and an array of appointments but we can finally begin to start a new chapter of our lives. It seems Elijah is really taking the bull by the horns at the moment he is settling in well to be moved up in nursery, he is making friends, even braved a blood test today (it wasn’t pretty though) and has declared this afternoon he doesn’t want to wear his nappy. The big boy pants are out and the rather snazzy purple potty is sitting proudly covered in Peppa stickers in the middle of the floor. He doesn’t do things by halves does he? From what he has been through, this sproglet doesn’t half surprise me every single day. I am off to weep in the corner about where my baby has gone and to have a small Gin (Am i kidding anyone with the ‘small’?!).