A brave lady who I met via the wonderful world of Instagram @heartwarriorwill has recently opened up about how hard she is finding the wait for her son’s surgery is. This is something I know all too well. I suppose it one of my biggest regrets in how I dealt with this at the time. I look back on those 6 months of waiting for Elijah’s op date and although we were very lucky in having our son home with us they were so tainted. Tainted with the feelings of uncertainty, anger, resentment, denial and anything else that was thrown into the mix for good measure. It’s one thing to deal with your son needing a potentially life threatening operation, it is quite another to try and cope with the fact you know this is coming, but you do not know when. We should have counted ourselves lucky we knew Elijah needed to have surgery within the first year. This is when the success rate for the op is at its highest. Normally it is in the first 6 months. Elijah was a very well and hea...
One Mum honestly confessing what it is really like to have a NICU baby with CHD and championing NICU and Maternal Mental Health issues to help raise awareness, support and comfort to others.