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Showing posts with the label CARE

To all the parents in NICU this Christmas

To you... The mum, dad or family member currently sitting in the NICU ward by your baby’s side wishing them to be home for Christmas. They had a good week last week, things were looking up, surely just one more week and you would all be home? Celebrati ng your first Christmas with your NICU graduate, getting to grips with your new baby whilst making your festive lunch and opening presents, breathing a sigh of relief that you were now finally home. As a family, you were in the place where you all belonged, it wasn't meant to be though was it? There have now been a few setbacks, the test results didn't come back as they should and further action is needed over the next week. The next week, which is Christmas. The stark reality is that you will be in NICU over Christmas. No amount of knitted Santa hats, tinsel on the display boards or the mock turkey dinner in the canteen will ever make it feel like a real Christmas. You feel sick just...

World Prematurity Day

Today, November the 17 th sees the world celebrate all the premature babies and their families. To raise awareness for premature births and to highlight the issues that they face. 1 in 10 babies will be born premature that is 15 million babies each year. Today, may also be the time some children learn what it means that they were premature and the journey they and their family took. It can always be hard to breach the subject with a child, to explain that they faced a tougher start to life than most. That they were poorly, they needed extra care and stayed in hospital. They had to fight, to stay here, to be where they are today. The world stands up today and celebrates all the babies who were born early, and their families. Today, is for the mums, dads, grannies, aunties, uncle’s, cousins and friends which watched their little one small, vulnerable and fragile flight for their lives. It is to recognise the issues they face, and how we can improve the NICU experience for all. It ...

Half of me, Half of you. - the real #mamaissue

The brilliant Jade features today with a #mamaissue that is going on right now. That the outcome will affect thousands of families,  hardworking families, loving families. The election is less than one week away and campaigns are in full swing. But, what happens if you know that YOUR FAMILY will be affected by the decision, that you have no control on as you cannot vote. That your children will be affected by, your husband? When you are now beginning to face prejudice every single day because of one man and his campaign? What do you do? Here is Jade's beautifully written but incredibly raw account of her family being affected by the election 16. 'When Mexico sends its people, they're not sending their best. They're not sending you. They're not sending you. They're sending people that have lots of problems, and they're bringing those problems with us. They're bringing drugs. They';re bringing crime. They're rapists. And some, I assume, are good...

Asking permission to be a mum #mamaissue

After kicking of my #mamaissue series, the response I have received from all of you has been amazing. I have enjoyed reading each and every one of your #mamaissues after all if it is an issue for you, then it has a right of place in this series. It seems very fitting and I am sure you will agree to kick of the guest posts with a fellow NICU MUM Ashton Conway from Our Preemie Family . Here are her very honest and real (two for one) NICU #mamaissues. ASKING PERMISSION TO BE A MOM August 18th, 2014 The one thing I never thought of when my husband and I decided to have kids was asking permission to do the most basic parenting things. And with your first child in the NICU you have to ask to do the most basic of parenting tasks. I had to wait until my son was 25 days old before I could even change his diaper. Changing a diaper is a task most other parents bicker and try and pass off to the other or a visiting grandparent and its something I had to wait 25 days to do. That's about...

My #mamaissue

I don’t think many of you will be surprised with my #mamaissue that I have chosen to kick of the series with. It is something I have both touched upon and gone into great detail about before on the blog. My #mamaissue is the lack of mental health support on offer for NICU parents in the UK. First of all, I know this will not be the case for all, and some will have received the support and care that all of us deserve. Why is it a postcode lottery in this country that determines the care that you receive when you baby is admitted to NICU? In this day and age surely we are all entitled to receive the same treatment? At the time I have to say I feel punished with the lack of treatment and support I had because of the area I was from. This should not be the case, and on a brighter note a friend had a baby in NICU in the same hospital and received some amazing support from a Bliss Nurse. She believes this may have been down to the fact that she was on her own, or that she was in there...