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Showing posts with the label CHDAWARENESS

Dear Elijah, it has been two years…

A bit of background, Elijah was born with a Congenital Heart Defect (CHD) called Tetralogy of Fallot (TOF),  this means there were four structural abnormalities wrong with his heart. These were repaired, via open heart surgery at Great Ormond Street in April 2015 when he was 6 months old.  Please be CHD aware 1 in 100 babies are diagnosed with some form of CHD. To mark Elijah's two year heart anniversary, I will be sharing some CHD/ heart related posts of our journey that have appeared on the blog through the last year over on the Honest Confessions Facebook page this week. Elijah and Alice celebrating two big occasions this week. Elijah, this week marks two big occasions, your friend’s Alice’s second birthday (Happy Birthday Alice!) and something else that you are likely not to remember. It won’t make much sense to you now, but one day it will. This week you will see Mummy and Daddy look at you funny a lot, and you will get extra cuddles and kisses and you ...

The judgement of a heart mum.

For those that follow me on social media will see that this week, I was faced with some criticism for a post I had written. The post was featured on The Mighty a few months ago, and has been shared via some heart/ CHD sites too. The post which you can read here: ( https://themighty.com/2016/12/congenital-heart-defect-people-asking-if-child-is-fixed/ )   was written about when someone asked a simple question about Elijah. Is he fixed? I politely answered, but in hindsight something was bothering me. It was the terminology. It was the realisation that no, my son will never be fixed. So, I did what I do with most things, I wrote to process how I was feeling at the time. It was not a discussion, it was not instruction to all other heart parents on how they should act when someone asks a question. I didn't demand a revolution that we all protest when someone dares ask us a question. It was a post about a mum who was struggling to come to terms with the reality of her son's conditio...

I really don't know what I am doing.

Vote for me! My blog started 9 months ago now, and is considered my baby. It took 9 months of growing and it developed into something so much more than I ever imagined. It has led me to connect and meet some amazing people. I started the blog as a way of processing what I was feeling when I was suffering from Post-Traumatic Stress Disorder after the birth of Elijah. I wanted to tell my story, as if writing it down would somehow make it better, that it may help others and it did. It gave me a channel to focus everything that I was feeling and thinking and to get it out. I didn’t expect much to come of the blog when I first set it up, I didn’t even set it up one of our friends did and I had no clue what I was doing! Then it became an addiction, I had to write and write and write, the more I did the more I felt like myself again. It was if I was becoming a better version of the person I was before as I was stronger, I had a focus and a purpose to help others who were going through t...

You are raising a sexist child and you don’t know it! Maybe…

I bring you yet another #mamaissue that's right two in one week and it isn't even Christmas yet! This amazing post is written by the lovely Anna who I actually know! We live in the same town! She is now starting out her blogging career but I know it will be a successful one if this post is anything to go by! Stay tuned for later in the series when Anna features again! I think by the end of this post you will evaluate if you are really raising a sexist child. We all know that our children are impressionable and we may  think  that we are watching what we say around them (most of us don’t drop the “C” bomb right?!) but what about the things that we are subconsciously saying? The throwaway comments that are planting teeny tiny seeds in teeny tiny minds. Here are 8 things that many of us have or do say and the implications that they could have down the line: 1.”Because I am a girl….” To explain something to your child using the term “because I am a girl” just shouldn’t b...

NICU MUM'S HEARTY #GIVEAWAY!

  Today the 29th Sept is an extra special day for me, it was my original due date with Elijah and is also #worldheartday so now seems a great time to announce the #NICUMUMHEARTYGIVEAWAY.   For all of the support the social media community has given me with my #bigkidsforgosh campaign,and for the amazing response my #PNDAW16 blog series got. I wanted to give something back. Whilst at the same time, saying thank you to some of you awesome people who have supported me too! It is to say thank you, to my readers I cannot believe when I first started back in March I would be nearing 20,000 blog views, 1.5k Insta follwers, 1k on Twitter and nearly 100 likes on the blog FB page. I truly am grateful and as long as you keep reading, I will keep writing. I will forever be in debt to you as starting this blog saved me, and it really did help me get over PTSD. I never thought I would be helping fellow NICU and heart mamas and papas, and even have my own online store. That I wo...

Sammie's Story- #medicalfiles

Generally when I have featured stories on the #medicalfiles series it has been with the focus on the baby. But what happens when you yourself have a life threatening condition when pregnant? How will this affect your baby? Your pregnancy? Your birth? Find out about how Sammie  @tattooed_mammy coped with being pregnant, and suffering from PDA. As you all know Elijah was born with a CHD. 1 in 100 babies are born with CHD. This is a brilliant post to raise awareness for another form of CHD. Please be warned this is a journey, and I will guarantee you will be emotional by the end!   8 months pregnant My PDA and me during pregnancy. So I don't really know where it all began, I guess you could say I was going through a pretty bad patch during 2011/2012 and one day I found myself in hospital due to an overdose. After numerous physical checks I thought it'd all be okay and I'd be allowed home. After a check up on my heart/breathing through a stethoscope, I saw the doct...