For those that follow me on social media will see that this week, I was faced with some criticism for a post I had written. The post was featured on The Mighty a few months ago, and has been shared via some heart/ CHD sites too. The post which you can read here: ( https://themighty.com/2016/12/congenital-heart-defect-people-asking-if-child-is-fixed/ ) was written about when someone asked a simple question about Elijah. Is he fixed? I politely answered, but in hindsight something was bothering me. It was the terminology. It was the realisation that no, my son will never be fixed. So, I did what I do with most things, I wrote to process how I was feeling at the time. It was not a discussion, it was not instruction to all other heart parents on how they should act when someone asks a question. I didn't demand a revolution that we all protest when someone dares ask us a question. It was a post about a mum who was struggling to come to terms with the reality of her son's conditio...
One Mum honestly confessing what it is really like to have a NICU baby with CHD and championing NICU and Maternal Mental Health issues to help raise awareness, support and comfort to others.