Skip to main content

Posts

Showing posts from January, 2019

I don't want your pity, just to retell our story.

Imagine a world where a zipper scar is recognised for the bearer being a #CHD hero and what that really means. When I tell someone about Elijah's heart condition (Tetralogy of Fallot a severe congential heart defect) I tend to guess their reaction. After four years we tend to be met with the same response. One that is slightly uncomfortable, one that sees them struggling to find the words after we tell them that we watched as our six month old baby was wheeled away into theatre, not knowing if we would see him alive again. Perhaps a glimmer of relief that it isn't their child that will face struggles, future surgeries, restrictions and life long appointments. We tend to be met with sympathy for our situation, which is greatfully recieved. Some have a relative or a friend they know that CHD has also resided in so have an insight into what our lives are like. Some ask questions which I jump at the chance of answering. Asking me questions about Elijah's condition me...

New Year... Same Old Me

New Year Morning 2019 Well,   I can officially say this is my first post of 2019 and also for a little while too, I hope it is the first of many more regular posts again. The truth is, I lost my blogging mojo and fell into a bit of a social media wormhole constantly comparing myself to others, seeing them announce their plans and features and wondering if I was really good enough. I have been questioning whether people really are interested in what I have to say as she types from her bed (I have been told that all the best writers do this from a fellow writer!) with her two kids being bribed with Milky Ways and Toy Story 2 for the umpteenth time. I have been blogging for few years now, and have had some amazing opportunities, I have been nominated for two awards, but alas my shelf is still waiting for the award I win and get to bring home. As much as it is an honour to be nominated and to be a finalist it makes me wonder, is it worth it all? Am I worth it all? I h...