Skip to main content

Helping Harper.




Harper
One of the most memorable milestones is when your child takes their 1st steps. When we were told E had suffered a stroke at birth we didn't know if he would learn to walk. But he did and it is a memory that we can recall down to the last detail.

But what if you knew your child wouldn't take their first steps but there was a chance that they could. You needed £80,000 wouldn't you do everything you can do make it happen?
This is little Harper and I am sharing her story in hope that it might help getting this little one to America for surgery not available here so she can take her first 👣 "Just4Children hoping to raise enough for Harper to have SDR surgery in America, a spinal surgery not available on the NHS that could change her life allowing her to walk unaided.

'Our Harper is 18 months old from Norwich.

On our second visit in a week to the hospital due to lack of movement, Harper was born via emergency C-section where she was found to have a rare True Knot in her cord which had cut off the circulation to her brain. After a 7 week stay in NICU due to severe hypoglycaemia we later found out that the cord had also caused multiple cystic lesions on her brain and she was diagnosed with Spastic Quadriplegic Cerebral Palsy and would never walk unaided, if at all.

Through medical advice we found SDR (Selective Dorsal Rhizotomy) surgery that is available in America. This is a spinal surgery which could help Harper take her first steps and is not currently available on the NHS.

Our aim is to raise the money for Just4Children for Harper to go to America and have the operation and the intense physiotherapy afterwards. Doing this we the hope that our little girl will not suffer from the day to day pain that cerebral palsy causes her so she can have the best quality of life possible." Please do share this amazing little girl's story and head over to her brave Mama's page @tashasharrocks for further details.'


Comments

Popular posts from this blog

5 things I want you to know about being a NICU Mum, this #nicuawarenessmonth

5 things I want you to know about being a NICU Mum, this #nicuawarenessmonth

In less than four days’ time, my eldest child will celebrate his fourth birthday.
Birthdays are always emotional especially when looking back, I class his birth as one of the most traumatic times of my life.
I recently wrote about how four years it still haunts me.
I didn’t just become a new mum, I became a NICU (Neo Natal Intensive Care Unit) Mum.
It was a title I didn’t ask for and we were part of a club we didn’t ask to join.
I have now spent nearly 4 years writing about our story on this blog, and for other publications and websites.
I have tried to raise awareness of the issues that affected us, I have tried to bring about change but ultimately and I hope I am right in saying I have helped other NICU Mum and CHD (Congenital Heart Defect) parents.
I have tried to process some of the emotions surrounding our NICU experience and use them to do something positive.
I had so much I wanted to say this #nicuawareness…

The time Fajita night resulted in having a baby in a bath.

Do you all remember my ever so optimistic natural birth plan? You can read it here.
However, spoiler alert, it didn’t happen.
What did happen was something no one was expecting.
Wednesday the 5th July… a mundane sort of day spent cleaning the house and doing the weekly shop. With Greg going back to work the next day I was determined to make sure everything was ready for when this baby arrived! I was three days off my due date and still hadn’t had one single sign this baby was imminently coming. I had been receiving messages from quite a few people asking if baby was here yet. I was getting fed up as everything I had tried to induce labour failed miserably and every morning for the last two weeks I woke up disappointed I wasn’t in labour! I gave up, walking didn’t help, pineapple made me sick and I was beginning to tire of the raspberry leaf tea. This baby was staying put.
In the evening I put Elijah bed, and we began to settle down for the evening. Fajitas had been served and consumed an…

To my second son on your first birthday...

To my darling boy,
You seem so large in my arms all of a sudden or perhaps it's because I am taking notice of how much you've changed.
From your less than traditional entrance in the world you were always going to do it differently weren't you?
You are already , walking, talking and climbing on anything you can get your hands and feet on.
You seem so old, yet are still so young.
You race around to keep up with your brother.
You play with and do whatever he does, perhaps that's why you seem so grown up.
I see how you look at him, with complete love and devotion.
I am writing to say two things.
One, Happy 1st Birthday my long haired loony. I hope you enjoy being spoilt beyond belief. Something your not too used too hay?
The other is to say I am sorry.
After you were born I wasn't myself for a very long time and somewhere along the line I blamed you.
I blamed you for how I was feeling, for the darkness and that wasn't fair.
I couldn't control the darkness and…