 |
| Blogging for Tiny Tickers |
They are a frankly amazing charity which is striving to help diagnose babies with undetected heart conditions and supporting families when they are getting that life changing diagnosis.
We used their THINK HEART campaign when we went for a foetal medicine scan with Harlow to check whether he too, would have CHD or not.
One of the most frequent questions we get about Elijah is why his condition wasn't picked up in the scans. Why it wasn't until 12 hours post birth that he was having cyanotic episodes and was admitted to NICU to be diagnosed.
The answer? No one knows, it just didn't show, get picked up and actually we were told the majority of TOF patients are diagnosed post birth.
Here he had a scan and was then diagnosed with Tetralogy of Fallot when we received the diagnosis it felt as though our world was crashing in around us.
I didn't know about Tiny Tickers until I started this very blog as a way or processing what we had been through, to raise awareness and to help others going through the same thing.
There seemed to be a lack of accessible information about, including those sharing their experiences when we were in hospital with Elijah. I wished I had known about Tiny Tickers as they certainly are doing a lot to change this.
This is why, I am so thrilled to be guest blogging for them and helping them help support other heart parents with my experiences as a heart mum.
My first blog is all about how I turned to blogging to process our CHD journey and how other parents can use blogging to process their experiences.
You can read it here.
I also penned a piece in honour of #nicuawarenessmonth which you can read here.
This is why I started my blog and to guest blog for a truly brilliant charity is why I began this in the first place, to help just one person makes it worthwhile.
Comments
Post a Comment